Podcast 023: The Trouble with Diagnosing Lyme Disease

well done patrick and ladies!

glad to hear these ladies treat tick-borne diseases and your perception of those walking into your offices with our invisible diseases!

continue having patrick back; he’s so knowledgeable and shares his personal experiences/wisdom to those of us on facebook lyme boards.

with his DJ voice, he’s so pleasant to listen to as well as his laughter. he’s taken a very serious subject and able to succinctly explain things to others with non-medical backgrounds. keep up the good work.

i’ll listen to your other podcasts in future days. thank you drs. for your podcast 😉

betty gordon, iowa activist
48 yrs. chronic lyme
35 yrs. MISDIAGNOSED by 40-50 drs.; unacceptable

widow of Jack Gordon, whose brain autopsy on 11.22.15 made WORLDWIDE HISTORY havings 2 diseases NEVER found together before:

LYME & LEWY body dementia causing visual & violent hallucinations like robin williams had.

Dr. Alan MacDonald did the above and also found a filarial nematode parasitic WORM that had LYME too!!

Alan was to have written up Jack’s case for a scientific medical journal with ME as 1st co-author over him, Paula Pierce whose lab did the blood staining of my husband’s brain, and Tom Grier who was to write up & summarize this for publication!! Alan got sick & retired FT.

I have pursued this with Marna Erikson, Univ. of Minn.. She has gotten recent brain cuttings/slides from Paula and looking for Bartonella, the cat scratch disease, or any other discoveries she finds with her expensive, powerful microscopes & DNA testings being done currently.

I’m anxious to find out the results of Marna’s findings!! stay tuned; I’ll share with the world! wish us luck on getting his case PUBLISHED.

in order to get jack’s death certificate AMENDED to show what alan’s autopsy & marna’s autopsy show, i’ll need to get a COURT ORDER to make these changes.

no one will do this on their own:

… md signing jack’s death certificate even after i sent her alan’s POSTER BOARD of jack’s autopsy results & slides she had sent me;

… dept. of iowa health director patti quinlisk, sp, said jack’s autopsy results CONTRIBUTED to his death and should be on there;

…. local county coroner would NOT work with me; “it’s an act of God to change a DC”! i sent him same things as i did the md who signed jack’s DC. NOT GOOD ENOUGH.

… wrote state coroner about this giving him above info. it took 6-9 months for him to send a simple reply … CONTACT MD WHO SIGNED THE DC! they are the only ones who can amend this.

…. took me 6-8 months to track down md as she quit where she worked; unemployed for 3-5 months. finally able to reach her, and sent her the above mentioned items.

… md, this has gone on almost 3 yrs. nov. 13, 2014 is when jack passed; i can’t change it. i called her; who told her this and that. vital statistics told her this.

… i called vital statistics director; her secretary took my message but director didn’t call me back. i persisted; finally able to talk to her. explained all the above. call state coroner’s office; see if he will help you.

… i called state coroner’s office; his secretary screened my call. explained above & more background. she talked to coroner; WE’RE NOT INVOLVED IN THIS. talk to vital statistics”.

… told secretary THEY referred me to coroner! she would call vital stats and then would talk to her boss, coroner. she did but failed to get back to me in a timely manner.

she told me, she has never talked to anyone who has PURSUED this as far as i have!!!! i am a BULLDOG!

…last wk. called again; there is nothing he can do. vital stats said
” I’D HAVE TO GET A COURT ORDER to amend this and i would be one to amend it, i believe.”

Told her this was a lot to go thru to get justice done. “Well, I’ll be getting a court order then.”